This guide was created to help you have a productive discussion with your healthcare provider by allowing you to organize your thoughts ahead of time. As this is only a guide, please be sure to talk to your healthcare provider about any additional information you would like to discuss or questions you may have.
This information is for your eyes only. No information entered will be saved or stored.
If a section isn't relevant to you or your upcoming appointment, you can click skip and move on to the next section.
This guide was prepared on
for an upcoming appointment with
Choose a category to reveal more specific symptoms. Once you select a specific symptom, you can indicate how severe it is.
Though there are different treatment options for Fabry disease, let's focus on how you and your healthcare provider may currently be treating yours.
What treatment are you receiving?
Are there reasons why you aren’t treating your Fabry?
Tests & Appointments
Because Fabry is a progressive disease, guidelines recommend regular monitoring of different organ systems and your mental health by your care team.
Select the categories below to discuss specific test results or appointments with other healthcare providers
Tests/results to discuss:
How are they related to you?
Remember that your appointment is your time to provide and receive crucial information about your health. Setting goals beforehand can help you take full advantage of the time you have with your healthcare provider.
What do you want to accomplish at your next appointment? (Check all that apply)
Add additional goal
For my appointment on:
What I would like to accomplish at our appointment:
I have a question:
My symptoms include:
I wanted to be sure to mention:
I am with my treatment.
I am not treating Fabry because:
I am also taking/using
I’d like to discuss:
Tests and Appointments
Can we talk about the following tests and/or members of my care team?
I specifically want to bring up:
Regarding my care team:
Do you want to go back and edit your answers?
Enter your email address below to email your Fabry Discussion Driver